Version: 17.0.0 | Published: 30 Oct 2023 | Updated: 570 days ago
Documentation
Description:
Secondary data tables are the corpus of curated data we receive from national data warehouses for all eligible participants not belonging in a data restricting cohort and not registered in Northern Ireland, Wales or Scotland. They are mostly longitudinal in nature and agnostic to the recruited disease. Data at the point of release captures all activity contained in the period covered within each of the datasets up to the latest quarter published by NHSE and end of calendar year for PHE/NCRAS.
Please Note: The linking files MH_bridge and DID_bridge will no longer be provided as part of the main programme release. Participant id is already been included in all tables making these files redundant.
- HES: Hospital Episode Statistics containing details of all commissioned activity during admissions, outpatient appointments and A&E attendances.
- DID: Metadata (demographics, modalities, ordering entity and dates) on diagnostic imaging tests collated from local radiology information systems.
- MORTALITY/CANCER_REGISTRY: Office of National Statistics registry data for cancer registrations and deaths inside and outside hospitals. Issue of death certificates and cancer network registrations are a requirement for an entry to these manifests.
- COVID: Data on covid test results for 100K participants. Pre Data Release V14 this data was found in the frequent release folder. For more information please see Clinical and phenotype data Secondary Data - COVID.
- MHMDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is up to March '14.
- MHLDDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is from March '14 to March '16.
- MHSDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset us from March '16 to March '19.
Is Part Of:
100k Secondary Linked Medical History Data
Coverage
Spatial:
United Kingdom, England
Typical Age Range:
0-150
Follow Up:
> 10 YEARS
Physical Sample Availability:
DNA
Pathway:
Secondary care.
Provenance
Origin
Purposes:
- ADMINISTRATIVE
- CARE
Sources:
- EPR
- OTHER
Collection Situations:
- ACCIDENT AND EMERGENCY
- IN-PATIENTS
- OUTPATIENTS
Temporal
Accrual Periodicity:
QUARTERLY
Distribution Release Date:
30 March 2023
Start Date:
07 September 1971
End Date:
04 August 2022
Time Lag:
2-6 MONTHS
Accessibility
Access
Access Service:
More information about the Genomics England Research Environment can be found
here:
https://www.genomicsengland.co.uk/about-genomics-england/research-environment/
https://research-help.genomicsengland.co.uk/display/GERE/1.+The+Genomics+England+Research+Environment
Genomics England 100k participants have consented to longitudinal lifetime
followup and recontact safely through our clinical network. BRST (Bioinformatics
Research Services) are a team of bioinformatics who know the dataset inside out
and provide consultancy projects on a case by case basis. Our network of
clinical and medical experts can be made available on case by case basis.
Researchers have the opportunity to work with our and access the GeCIP network
who are a community of world-leading experts in specific cancers and rare
diseases.
Access Request Cost:
Fees will be dependent on the type of access that is necessary. Raw data is not
eligible for export. Summary-level data may be exported provided that it is
approved through the Genomics England Airlock Process
Delivery Lead Time:
2-6 MONTHS
Jurisdictions:
GB-GBN
Data Controller:
NHS DIGITAL
Data Processor:
GENOMICS ENGLAND
Usage
Data Use Limitations:
GENERAL RESEARCH USE
Data Use Requirements:
- ETHICS APPROVAL REQUIRED
- PROJECT SPECIFIC RESTRICTIONS
- PUBLICATION MORATORIUM
Resource Creators:
NHS Digital
Is Referenced By:
Format and Standards
Vocabulary Encoding Schemes:
- ICD10
- NHS NATIONAL CODES
- ODS
- OPCS4
- READ
- SNOMED CT
Conforms To:
NHS DATA DICTIONARY
Languages:
en
Formats:
Multiple Formats Available
Enrichment and Linkage
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Findings
Rare Disease - Number of genomes
73,517
Count
30 March 2023
Findings
Cancer Germline - Number of genomes
32,753
Count
30 March 2023
Findings
Cancer Tumour - Number of genomes
17,003
Count
30 March 2023
Persons
Cancer Participants
15,624
Count
30 March 2023
Persons
Rare Disease Participants
72,874
Count
30 March 2023
Origin
Name:
Data Catalogue