Version: 19.0.2 | Published: 23 Jan 2026 | Updated: 33 days ago
Summary
Documentation
Associated Media:
Description:
Secondary data tables are the corpus of curated data we receive from national data warehouses for all eligible participants not belonging in a data restricting cohort and not registered in Northern Ireland, Wales or Scotland. They are mostly longitudinal in nature and agnostic to the recruited disease. Data at the point of release captures all activity contained in the period covered within each of the datasets up to the latest quarter published by NHSE and end of calendar year for PHE/NCRAS.
Please Note: The linking files MH_bridge and DID_bridge will no longer be provided as part of the main programme release. Participant id is already been included in all tables making these files redundant.
- HES: Hospital Episode Statistics containing details of all commissioned activity during admissions, outpatient appointments and A&E attendances.
- DID: Metadata (demographics, modalities, ordering entity and dates) on diagnostic imaging tests collated from local radiology information systems.
- MORTALITY/CANCER_REGISTRY: Office of National Statistics registry data for cancer registrations and deaths inside and outside hospitals. Issue of death certificates and cancer network registrations are a requirement for an entry to these manifests.
- COVID: Data on covid test results for 100K participants. Pre Data Release V14 this data was found in the frequent release folder. For more information please see Clinical and phenotype data Secondary Data - COVID.
- MHMDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is up to March '14.
- MHLDDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is from March '14 to March '16.
- MHSDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset us from March '16 to March '19.
Coverage
Spatial:
United Kingdom, England
Typical Age Range Min:
0
Typical Age Range Max:
150
Material Type:
DNA
Follow Up:
> 10 Years
Pathway:
Secondary care.
Provenance
Origin
Purpose:
- Administrative
- Care
Dataset Type:
Health and disease
Source:
- EPR
- Other
Collection Source:
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
Temporal
Publishing Frequency:
Quarterly
Distribution Release Date:
30 March 2023
Start Date:
07 September 1971
End Date:
04 August 2022
Time Lag:
2-6 months
Accessibility
Access
Access Rights:
Access Service:
More information about the Genomics England Research Environment can be found
here: https://www.genomicsengland.co.uk/research Genomics England 100k
participants have consented to longitudinal lifetime followup and recontact
safely through our clinical network. BRST (Bioinformatics Research Services) are
a team of bioinformatics who know the dataset inside out and provide consultancy
projects on a case by case basis. Our network of clinical and medical experts
can be made available on case by case basis. Researchers have the opportunity to
work with our and access the GeCIP network who are a community of world-leading
experts in specific cancers and rare diseases.
Access Request Cost:
Fees will be dependent on the type of access that is necessary. Raw data is not
eligible for export. Summary-level data may be exported provided that it is
approved through the Genomics England Airlock Process
Delivery Lead Time:
2-6 months
Data Controller:
NHS DIGITAL
Data Processor:
GENOMICS ENGLAND
Jurisdiction:
Great Britain
Usage
Data Use Limitation:
General research use
Data Use Requirements:
- Ethics approval required
- Project-specific restrictions
- Publication moratorium
Resource Creator:
NHS Digital
Format and Standards
Vocabulary Encoding Scheme:
- OPCS4
- READ
- SNOMED CT
- NHS NATIONAL CODES
- ODS
- ICD10
Conforms To:
NHS DATA DICTIONARY
Language:
English
Format:
Multiple Formats Available
Enrichment and Linkage
Derived From
PID
Title
URL
Multiple
Linkable Datasets
PID
Title
URL
Not applicable
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Findings
Rare Disease - Number of genomes
73517
Count
30 March 2023
Findings
Cancer Tumour - Number of genomes
17003
Count
30 March 2023
Findings
Cancer Germline - Number of genomes
32753
Count
30 March 2023
Persons
Cancer Participants
15624
Count
30 March 2023
Persons
Rare Disease Participants
72874
Count
30 March 2023
Origin
Name:
Data Catalogue